2017-04-30 Recovery Day 55

Being the weekend, we slept in until 7:00, and like yesterday we had breakfast in bed. As the mornings before, the muscle spasms in my left leg still are there. Today, the spasms would stick around instead of disappearing shortly after getting up. I would argue that today it was pain not spasms. Still not sure what the difference is between the two. This will be a discussion with my primary Doctor.

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2017-04-29 Recovery Day 54

Being Saturday, we slept in until 7:00. Dianne even prepared breakfast that we had in bed. The plan for today was for Dianne and Denise to do some garden work, first in front of the house and later in the backyard. I would be with them, sitting in my camping chair. The idea was that I would be outside enjoying the fresh air.

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2017-04-28 Recovery Day 53

Overall it was a very good night of sleep. I am sure that much was due because of yesterday’s strenuous activities getting to and from the UCSF Parnassus Campus. As the mornings before, the muscle spasms in my left leg still are there, And today, the pain was a level 9 that took most of the early morning to wear off.

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2017-04-27 Recovery Day 52 – Updated

Today was a special day, Dianne and I were at UCSF Parnassus Campus for a consultative meeting to determine if I am a good candidate for a bone marrow transplant (BMT), also called a stem cell transplant.

Before getting into the details, I need to point out, getting from Antioch to UCSF Parnassus Campus is no simple task. During rush hour it can take 2-3 hours, assuming no accidents. Between rush hour, with lots of luck, it may only take 1 hour 15 minutes.

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My Letter to the ISO-IEC-ITU-UNECE MoU/MG Members

Dear MoU/MG Members,

This letter is to provide you with an update about my status regarding my volunteer work within ISO, as well as my personal life.

Some of you are aware that I notified ISO/CS on 14 March of my immediate resignation from the chairmanship of ISO/TC 154 and all other ISO activity.

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Letter from the ISO-IEC-ITU-UNECE MoU/MG Secretariat

Dear Klaus,

I’ve forwarded your letter to the MoU/MG mailing list.

This announcement comes all of a sudden and your medical diagnosis must have caused a great shock to you and your family. I absolutely understand your decision to cease all business work, but to concentrate on medical treatment and to maximize enjoying private life.

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Letter from the ISO-IEC-ITU-UNECE MoU/MG Chair

Dear Klaus,

I was shocked and saddened to hear your news, and fully understand your priorities for survival. It sounds from the blog that you are getting excellent care. Our thoughts and prayers are with you and your family at this difficult time.

We really missed you at the meeting this week, and I communicate the following resolution:

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2017-04-26 Recovery Day 51

Overall it was another good night of sleep. As the mornings before, the muscle spasms in my left leg still are there, but the pain level is getting less and less. Maybe there is a chance that soon they will be gone all together. As to the water retention issue in my legs, I wear compression socks during the day, take a water pill after getting up and work on my diet to ensure it contains protein.

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2017-04-25 Recovery Day 50

This morning I woke up around 3:00 to discover that I was covered in sweat, this never happened before. I will have to check this out later today when I am at the center for my second Carfilzomib treatment.

Getting up this morning I encounter lightheadedness which does not wanted to get away. As to the pain in my legs, I was informed yesterday that these are muscle spasms that are a common side effect to the medication I take. Walking it off or massaging the area will help with eliminating them.

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2017-04-24 Recovery Day 49

Today is day one of session two of cycle two. It starts in the late morning with Dexamethasone and is followed in the afternoon with the Carfilzomib treatment via infusion pump.

Overall it was another good night. As the mornings before, the pain level of my left upper leg shoot up to a 8-9 the moment I got out of bed. Actually, today the pain was also in my right leg. As before, this pain did not stop me getting ready for another day.

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