2019-10-17 Living with Cancer Day 953

Today was another Good day. Again I did not get up at my normal time because I wanted to be rested for our trip to UCSF. I got up at 8:30, with some dizziness but no stomach issues. I did my morning chores before going downstairs. By the time I got downstairs I started to sweat which would not stop until about 9:30, shortly before we left at 10:00 for UCSF.

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Dianne pick me up at we left at 10:00 for our 12:00 appointment with Dr. Nina Shaw our UCSF Oncology doctor. Our drive to UCSF Helen Diller Medical Center at 400 Parnassus Ave, San Francisco, CA was about 1hr 45min for 41 miles (ca. 66 km).

The appointment was about giving us an update of our options on moving forward. For now the CAR T-cell trial is full, even if there is a place, my over all numbers are not all where they need to be. The goal now is to get them there. To start we will go ahead with the new treatment the Kyprolis/Cytoxan drugs. I will have to go 2 days in row for 3 weeks for infusion, followed off one week.

We will closely watch each week what the numbers do, as well what side effects develop. The goal is for the numbers to improve and hopefully the side effects are at a minimum to not have bad days. For the trial the looking for candidates that are in good shape not having to deal with bad days, because they will have to be able to handle the bad side effects the trial may produce. Our next meeting will be a Video meeting on the 4th November.

After getting back home and Dianne set me up with the hydration. For the next hour and a half we both watched some TV before it was time to get supper ready. I spend the time to get my system ready for the future video meetings with UCSF in the future, staring in November. Which will be so nice not to have to drive for simple F2F appointment to San Francisco.

That’s it for today, after dinner we watched TV for the rest of the evening until it was time to call it a day.