Author Archives: Klaus-Dieter Naujok

2017-05-05 Recovery Day 60 (Update 2)

As to the night, a good night, nothing different to report. As to the pain when getting up, the leg pain was right there in the upper part and lasted throughout the shower I took getting ready to go later this afternoon to Alta Bates Summit Medical Center in Berkeley. Since I am not allowed to eat and drink anything starting this morning, I went back to bed, limiting my activities that would only increase the demand for water and food.

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2017-05-04 Recovery Day 59

As to the night, a good night, nothing different to report. As to the pain when getting up, the leg pain was right there in the upper part and lasted for about 30 minutes. The T4 pain showed up about 45 minutes after getting up. Last but not least, the right breast pain surfaced 1 hour after getting up. The breakthrough meds did little to lower the pain. The T4 pain went quickly out of control and since the next time slot for more breakthrough is still an hour away, all I could do is rest in a horizontal position in the recliner.

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2017-05-03 Recovery Day 58

As to the night, a good night, nothing different to report. As to the pain when getting up, the leg pain was almost not notable and gone within 5 minutes. The T4 pain is still shows up, about an hour after getting up. The level slowly increases. We changed on Monday the dosage and timing to increase the coverage time and hopefully lower the pain level to 5 and below.

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2017-05-02 Recovery Day 57

Today is day two of session three for cycle two, which signals the end of cycle two. Next week is a off week, also called a rest week, getting ready for cycle three to start Monday, 15 April.

As to the night, it was another good night! which seems to become the norm. As to the pain when getting up, the leg pain and later the T4 one, we changed yesterday the dosage to changed that. The result, I still get the leg pain the moment I get up, however today the level was lower and I was able to walk it of within about 10 minutes.

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2017-05-01 Recovery Day 56

Today is day one of session three for cycle two. As a reminder, it starts in the late morning with Dexamethasone and is followed in the afternoon with the Carfilzomib treatment via infusion.

As to the night from 30 April to 01 May, it was another good night. The pain associated with getting up in the morning seems to be following a certain pattern. It starts with the pain (muscle spasms) of my left upper leg becoming noticeable the moment I got out of bed. Moving around will in most cases lower the pain level and eventually eliminate it all together. About an hour after getting up, the pain in the T4 area will have risen to level of 7-8, if not more, requiring me to take the breakthrough medication.

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2017-04-30 Recovery Day 55

Being the weekend, we slept in until 7:00, and like yesterday we had breakfast in bed. As the mornings before, the muscle spasms in my left leg still are there. Today, the spasms would stick around instead of disappearing shortly after getting up. I would argue that today it was pain not spasms. Still not sure what the difference is between the two. This will be a discussion with my primary Doctor.

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2017-04-29 Recovery Day 54

Being Saturday, we slept in until 7:00. Dianne even prepared breakfast that we had in bed. The plan for today was for Dianne and Denise to do some garden work, first in front of the house and later in the backyard. I would be with them, sitting in my camping chair. The idea was that I would be outside enjoying the fresh air.

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2017-04-28 Recovery Day 53

Overall it was a very good night of sleep. I am sure that much was due because of yesterday’s strenuous activities getting to and from the UCSF Parnassus Campus. As the mornings before, the muscle spasms in my left leg still are there, And today, the pain was a level 9 that took most of the early morning to wear off.

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2017-04-27 Recovery Day 52 – Updated

Today was a special day, Dianne and I were at UCSF Parnassus Campus for a consultative meeting to determine if I am a good candidate for a bone marrow transplant (BMT), also called a stem cell transplant.

Before getting into the details, I need to point out, getting from Antioch to UCSF Parnassus Campus is no simple task. During rush hour it can take 2-3 hours, assuming no accidents. Between rush hour, with lots of luck, it may only take 1 hour 15 minutes.

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My Letter to the ISO-IEC-ITU-UNECE MoU/MG Members

Dear MoU/MG Members,

This letter is to provide you with an update about my status regarding my volunteer work within ISO, as well as my personal life.

Some of you are aware that I notified ISO/CS on 14 March of my immediate resignation from the chairmanship of ISO/TC 154 and all other ISO activity.

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