2019-08-12 Living with Cancer Day 887

Date:   2019 August 12, at 06:37:31 PDT
Weather:    61 °F Clear

Getting up
Time to get up and ready for the day. Current status is, light stomach cramps, dizziness and ringing in the ears. After my morning routine I rested a bit before going downstairs.

Date:   2019 August 12, at 07:14:24 PDT
Weather:    64 °F Sunny

Now Downstairs
I went downstairs and had a light breakfast with tea because of my stomach aches. After that I rested and got ready for our walk.

Date:   2019 August 12, at 08:01:05 PDT
Weather:    72 °F Sunny

Out walking
The walk with Dean started of ok, however after 2/3 of our walk my left shoulder started to be painful. The pain forced me to stop and rest for the last 1/3 of the way. In addition to the shoulder pain my stomach started to act up. The good news I made it home.

Date:   2019 August 12, at 08:38:05 PDT
Weather:    73 °F Sunny

Back home from walking
Getting home Dean setup the Oxygen Compressor for me. It did help me with my breathing which was a bit shallow because of the pain. He watched me to make sure I was Ok before leaving. I had retired to my recliner and before I knew it was dozing off.

After about an hour later I was able to move around and get something to drink and eat. Not having much energy I just caught up with some TV shows I had recorded. Soon lunchtime did arrive.

Date:   2019 August 12, at 13:49:40 PDT
Weather:    91 °F Sunny

Lunch Time
Dean was so nice to get me a small salad from Wendys. In the meantime I was trying to get ESPN3 up on Apple TV. I was able to get it on my iPhone and Laptop but on ATV it tells me I have no account. I therefore watched Bayern vs Energie Cottbus on my laptop. However, not giving up with ATV I decided to logout and then back in, which suddenly allow me to have access to the game on ESPN3.

After the game was over I switched to regular TV watching some other shows I had recorded until I had to get ready for my doctor appointment.

Date:   2019 August 12, at 14:39:16 PDT
Weather:    93 °F Sunny

Time for Follow-Up Appointment
Dianne picked me up for my follow-up appointment with my oncology doctor. In summary the new cancer treatment seems to be very effective. The issue of fatigue is due to the fungus treatment, especially the antibiotics and its dosage.

Moving forward, my current antibiotic will be changed to one that does not have the skin issues as a side effect, a new trough ad fungus draw are scheduled for 1st week in September.

Before leaving, I went for a CBC and Myeloma blood draw. Since the result of the CBC draw sowed that the platelet count was low, 46, the doctor suspended taking the cancer pill (Pomalyst) for now.

Date:   2019 August 12, at 17:15:28 PDT
Weather:    95 °F Sunny

Dinner Time
Getting back home from the doctor appointment I rested since I was totally exhausted. Dinner time was not far away, therefore I watched some more recorded TV shows.

Once dinner was served, I just could not get my appetite up to eat much. Some of it is link to my lack of energy, the other that I still have stomach cramps.

Date:   2019 August 12, at 18:34:57 PDT
Weather:    93°F Sunny

Calling it a Day
As mention before, I am just unable to concentrate on anything. It took some doing to finished today’s blog. On the positive side, using the Day One application did help since I enter the events as they happen, leaving at the end of the day just the dinner and calling a day events to be entered.

Having finished dinner, we spend the rest of the evening watching TV before calling it a day.

2019-08-10 Living with Cancer Day 885

Date:   2019 August 10, at 07:20:48 PDT
Weather:    68 °F Mostly Cloudy
Location:   Antioch, CA, United States

Getting up
Dieter, Carsten and Renée arrived late last night. I was already in bed, since after dinner, I had taken a shower which caused my system to be very low on energy.

Getting up I had some stomach aches and was a bit lightheaded. After finishing my morning routine, I went downstairs.

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2019-08-09 Living with Cancer Day 884

Today’s posting continues using the layout created by the application Day One which capture my activities. Let me know what you think.

Date:   2019 August 09, at 06:35:17 PDT
Weather:    64 °F Sunny
Location:   Antioch, CA, United States

TGIF – Plans for today
Got up a bit early for an appointment at the Cancer Center for some hydration before the weekend. Having our weekly lunch with some of my Premenos friends that I worked with from 1990 to 2000.

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2019-06-21 Living with Cancer Day 838

Today was a very good day, it started off with getting up early at 6:00 to have breakfast at Denny’s before getting to the Quest Laboratory at 7:45 for the trough test at 8:00. I got back home by 8:15 to get ready for my morning walk with Dean. Because I was ready at 8:45 and Dean was outside doing some grass trimming we started off early with our walk to beat the heat. Overall we had a good walk, we got a bit faster than yesterday for the same route by about 10 minutes. The Oxygen Saturation Levels look good, 95% at the start without oxygen, with Oxygen 97%, 30 minutes later at turning point 90%, 2 and 3 minutes later 92%, returning back home at end of walk 92% recovery to 95% within 5 minutes. During the day without Oxygen, it is in the range between 96-98%

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2019-06-20 Living with Cancer Day 837

Today was a good day, it started off with a small problem after having finished my breakfast and taking my morning medication by 8:00 am. Sweating was not an issue until I started to look for my glasses, it took me 45 minutes before I found them in a place that I have never placed them before. The activity to look everywhere which meant walking everywhere throughout the house, got me sweating. Because of the delay in getting ready for my walk, we did not start our walk until 9:15. Overall my Oxygen Saturation Level stayed around 95% during resting and inside small activities, like making breakfast, dropping down to 92% for bigger ones. During the walk is was between 90-92%, recovery to 95% after resting.

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2019-06-17 Living with Cancer Day 835

Today was a so-so day, my sleep has improved, almost back to the normal pattern. Around 4:00 my stomach did not feel too good, so I took a Zofran. Because of the change in schedule for my Voriconazole Antibiotics, I got up at 7:00 to have completed my breakfast and take my morning medication by 8:00. After 8:00 I prepared for my morning walk using the Portable Oxygen Concentrator. Halfway through the preparation, I broke out in heavy sweat that lasted just be for starting our walk.

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2019-06-16 Living with Cancer Day 834

Today was not a good day, I still did not sleep good during the night and the stomach cramps and pains were still there in the morning. I stayed in bed hoping for my stomach to settle. I had a light breakfast before the cut-off time to take my antibiotic at 9:00am. However, 30 minutes later I hat to vomit. I stayed in bed taking all my medication on time and rested as my stomach started to settle. I went downstairs around 10:30 to continue my resting, finally around noon, just for lunch, I started to feel good enough to have lunch.

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2019-06-11 Living with Cancer Day 829

Today was good day, I do remember what I did, not like yesterday when I had trouble recalling what I did. My Temperature during the day was between 98.4 and 99.1, which is OK, however, my pulse rate was between 75 and 131, which could be a side effect or an infection. We will know more tomorrow, my chemo treatment day.

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2019-06-05 Living with Cancer Day 823

Today was a somewhat good day! It was day one after discharge. I had a good night, no need for oxygen. After breakfast, I took some oxygen in preparation for being outside for two doctor appointments. Being beginners, we had to figure out how best to use oxygen machinery. It did not take too much time for us to figure it out. Returning back home there was a need for oxygen for the rest of the day. Overall, resting helped a lot to get some of my energy back.

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