Tag Archives: Recovery

2017-09-24 Recovery Day 202

As Dianne says lately, he (I) has one good day, followed by a bad day. Today was another bad day. It started late last night when my mouths started to hurt. Lucky for me no mouths sores, however the pain and discomfort kept me from a good sleep. I got some Magic Mouth Wash which tastes awful but did bring down the pain level, not the discomfort. Waking up this morning my mouth and stomach were just in an awful stage. I felt so bad that I only eat a quarter of my breakfast.

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2017-09-23 Recovery Day 201

Today was a good day almost a repeat of yesterday. Sleeping is not a problem, no appetite issues and my stomach issues are slowly going away, no real pains or cramps, just discomfort. The CBC data was almost identical to yesterday’s, except for the platelets that were still not above 10, so I got another platelets transfusion this morning.

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2017-09-22 Recovery Day 200

I had no problems sleeping last night, I even slept in this morning. However, I was not myself, no energy. Instead my stomach pains and cramps were back. I was not having a good morning. The CBC data came in around 6:30 and as expected last night my platelets were super low at 6.0, all that was left was waiting for the platelets transfusion sometime this morning. As it turns out, the transfusion was given after breakfast and lasted less then 30 minutes.

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2017-09-21 Recovery Day 199

I ended my posting yesterday with:

The big test will be tonight. That’s it for today.

The answer, I had a good night. For starters I was able to fall a sleep after taking my last scheduled medication Ativan to address my nausea and vomiting. It also helps with trouble to go sleeping. I took the medication at 8:30 PM and had no problem sleeping 30 minutes later. I woke up around midnight, but was back to sleep a few minutes later. This repeated itself every hour or two. All I remember is that I was awake for a minute or two, looking at the clock before doing the same again an hour or two later. As to having stomach cramps or the urge to vomiting, no such urges. For now, after one day, it seems that the change in medication worked. Let’s see what tomorrow brings.

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2017-09-18/20 Recovery Day 196/198

I apologize for not letting you know what happen the last two days. I found out that a number of you got very worried not finding a blog entry for the last two days, not counting today. Believe me I would have put up a blog entry, if I was able. However, I hit my rock bottom low the last 2 1/2 days. It is part of the treatment plan, during the last 3 days my lap result numbers dropped so low that many things can/will happen. Since this is expected, depending on the numbers and the relation to other variables, adjustments are made in the medication to achieve the overall goal. One point to remember is that every case is as different as its patient, and there for the treatment plan.

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2017-09-16 Recovery Day 194

I did not have a bad sleep, even with the nurse dropping by for vitals. My stomach cramps were low with a heat pack. I had breakfast around 8:30, however 30 minutes later my stomach pains and cramps came back. The nurse came by taking my vitals and given my arsenal of pills. Dianne and I went for our morning walk and afterwards I had a shower. Most of the day was spent to find a way to lower my stomach pains and cramps.

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2017-09-15 Recovery Day 193

Day 1 of my Rebirth. It did not start on a good note, woke up with bad stomach cramping and pain, which lasted all day.

My primary UCSF doctor has been checking in every morning. She explained why the pain is concentrating on the stomach because of the stem cells doing their thing. Over time, around days 5-7, this will slow down as new White Blood Cells start growing again. BTW, it is not only the doctors, but all of the Staff which is very attentive and informative.

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2017-09-14 Recovery Day 192 [Revised]

This morning @ 11:00 AM will be Day 0 for my Stem Cell Transplant. It is like being born again. The next 7-8 days will not be gentle to me as the new baby cells grow and split into adult cells trying to replace the current old adult cells or fill the void left by older adult cells that have reach the end of their life span. All this is associated with pain and discomfort for the first week before it gets better. During the first week after day 0, I will be monitored very closely. Many blood test and medication adjustments, some by IV, others via pills.

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2017-09-11 Recovery Day 189

Today was another good day, like yesterday there is not much to write about. I continue to wake up with minimum back pain and have not taken any breakthrough pain medication (Dilaudid). After breakfast I wend for my walk and afterwards I watered the flowers in our backyard. The watering and walking raised my back’s pain level a bit, so I inside to rest for awhile.

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2017-09-10 Recovery Day 188

Today was a good day, there is not much to write about. I woke up with minimum back pain that needed no medication. The last time I took breakthrough pain medication (Dilaudid) was yesterday at lunch, that is over 30+ hours.

The day turned out to be like most other days. After breakfast I wend for my walk, since it is Sunday, Dianne joint me. After the walk I rested before watching the Raiders play and beat the Titans 26 to 16. The game ended over an hour after lunch.

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