2019-12-01 Living with Cancer Day 998

Date: 2019 December 01, at 07:15:05 PST
Weather: 54 °F to 59 °F Cloudy and Rain
Location: UCSF Helen Diller Medical Center at Parnassus Heights, San Francisco, CA

A New Day
Today started at 6:00 with my vitals being taken and my blood being drawn. Results became available at 6:30, with the numbers holding.

I did some cleanup of my overnight devices, iPad, iPhone, and Laptop, ready for use during the day.

It’s 7:15, ready for my 1st walk, on return my breakfast should arrive soon. Got 4 walks around the ward today within 15 minutes. After my return, I cleaned up my bed station, started checking my mail, still a lot of ads for the last day of Thanksgiving and tomorrow’s Cyber Monday. Last but not, resting and waiting for my breakfast.

Breakfast Confusion
Breakfast did arrive around 8:00, but it was a bit short, all I got was a Strawberry Yogurt and a White Roll. It turns out there was some problem with the online system.

Until the real breakfast would arrive around 8:30 the day nurse took my vitals and gave me my regular morning medication.

By 8:20 Dr. Shah my UCSF Oncology doctor came down for her round. She is very happy that I am still walking, even increased my rounds, it will help with the recovery as my condition will drop when I had my last treatment tomorrow morning.

BTW, Dr. Shah will not be visiting me tomorrow, but Dr. Thomas Martin, associate director of UCSF’s myeloma program and director of the unrelated donor transplantation programs for adults at UCSF Medical Center, will see me instead.

Back on normal Schedule
Around 8:45 my schedule was back on normal starting with getting my daily medication a bit late, but that is no real issue. What is important is getting my Anti-fungus Antibiotics on time, which is 9:00 Am and 9:00 PM.

After having taken my medication I started to feel a bit dizzy around 9:15 and took some dizzy medication only to doze off watching TV.

I woke up around 10:15 to take my Treatment Medication, Day 3, Cycle 2. Tonight I will start my last Day.

My 2nd Walk
Dianne and I had our second walk before lunch, it is getting a bit harder to walk our 3 round as the Chemo Treatment is starting to take its toll on my body, however, I did it. Getting back to my room I took a 30 minutes nap before lunch arrived.

Lunch Time and More
Lunchtime was on time, I did order a bit too much, I side effect as my Chemo Treatment is starting to take effect. After lunch, I took along a 1-hour 15-minute Nap, opening my eyes every so often to watch a few moments of TV Dianne was watching.

Around my long nap the day nurse came by to replace my power port dressing, the needle was not replaced.

Afternoon Activities
Being awake after my long nap, I watch some movies on TV from 14:00 to 15:45. I had my shower right afterward before resting a bit until Dinner arrived around 16:45.

Like lunch, dinner was a bit too much as well. I will cut back my orders for tomorrow. After dinner, I rested again and watched some TV.

Evening Activities
I ended the day by watching TV and getting some rest. Around 21:00 (9:00 PM) shortly after nurses shift change, it is time for my night setup. Starting with the Pulse Oximeter being put on and checked out. By 21:30 I put on my CPAP Nasal Mask and let the machine start up automatically by just taking some deep breath.

Around 22:00 the nurse comes with the Chemo medication to start the treatment. Tonight it will be the last of 4 treatment cycles, Day 4, cycle 1. Tomorrow at 10:00 I will receive my last treatment, Day 4, cycle 2. It looks like my body will survive this one.

Treatment Cycle Two
After having finished treatment cycle one, I may get my clean Stem Cells injected either on Tuesday or Wednesday. It will be stage two of the treatment lasting anywhere from 10 to 15 days. This treatment cycle will be rougher than the first one and the question is can my body survive it?

2019-11-30 Living with Cancer Day 997

Date: 2019 November 29, at 06:30:57 PST
Weather: 43°F to 52F Mostly Cloudy
Location: UCSF Helen Diller MC at Parnassus Heights, San Francisco, CA

Getting started
It is about 6:30 and the night nurse got ready for me to start the day. After taking my vitals I am getting my morning medication. Around 7:00 my FentaNYL patches were changed as well.

Shortly afterward my breakfast arrived, which was very good. Dianne and I went after it for a walk around the ward.

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2019-11-16 Living with Cancer Day 983

Today was another so-so day, the plan was to get up a bit earlier for Saturday since Dieter, Renee and Carsten had arrived late last night for a short visit. However, I was hit by dizziness and some stomach issues, I, therefore, slept in. Getting downstairs around 9:30 I had a light breakfast before taking my medication. Dianne hooked me up for my hydration so that it was done by lunchtime. I rested during the hydration which helped with my dizziness going down.

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2019-11-13 Living with Cancer Day 980

Today was another good day, though the night was not. As during the first and second cycle, week 1, day 1, had as a side effect that I would be sweating after going to bed from about 11:00 PM to 5:00 AM from head to toe. I had it again, being preparing, I covered the bed with two large towels, which I change when I had to get up around midnight and later at 3:00 AM. Today’s treatment was part 2 of the Kyprolis/Cytoxan treatment week. Next week will be week 3, after which I will be off for a week. After that, we repeat the whole cycle again.

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2019-11-12 Living with Cancer Day 979

Today was another so-so day. Since my treatment today was too started at 9:00, I got up early at 7:00. My temperature was a bit elevated at 99.1F, hopefully, it will be done by the time of treatment. By the time I finished my morning chores and going downstairs, it was 7:30. I had a good breakfast; creamy cheese on German Rye Bread. After taking my antibiotics and regular medication I got ready for Dianne to pick me up to take me to the cancer center for my treatment.

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2019-11-11 Living with Cancer Day 978

Today was another so-so day. As is normal for weekdays I wake around 5:00 AM when Dianne gets ready for work. I check my temperature and the overall status of my Dizziness, Stomach issues, and Sleep Apnea. This morning was no different, except with the results, I had a high temperature of 100F and was sweating. Because of it, I went back to sleep. By 8:00 the temperature was still high 99.5F, so I stayed in bed. I checked again at 9:00, the same result. At 10:00 still no change, but it was time to get up and go downstairs, which I did.

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2019-11-02/04 Living with Cancer Day 969-971

The last three days have been very busy with lots of things, such as changing my schedule on short notice, all this keeping me very busy, making it hard to write my daily log. Let me assure you that I am OK, hanging in there, doing what the doctors have ordered. The highlight of the weekend was the afternoon concert of James Garner’s Tribute To Johnny Cash at the El Campanil Theatre in downtown Antioch.

I will undergo another Blood Transfusion and get three Zarxio Injections to bust my White Blood Cell.

That’s it for today, I hope to find the time to get back to the more detailed blog by the end of the week.

2019-10-30 Living with Cancer Day 966

Today was another good day, though the night was not. As last week, after each treatment, I would start after going to bed sweat from about 11:00 PM to 5:00 AM from head to toe. Today’s treatment was part 2 of the Kyprolis/Cytoxan treatment week. Next week will be week 3, after which I will be off for week. After that we repeat the whole cycle again. This time we were prepared, learning from last week. Preparing the bed with two large towels, which I change when I had to get up around 2:00 AM.

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2019-10-24 Living with Cancer Day 960

Today was a good day even with all the sweating all night long from 9:00 PM last night to 6:00 AM today. The sweating was no different that yesterday and the day before, from head to toe. I had to get up very early to be ready for Dianne to take me Sutter Delta Medical Center for my 8:00 Blood Transfusion appointment to get my Hemoglobin count higher. The treatment ended around 1:00 PM, there was some good news, I received breakfast and lunch.

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2019-10-23 Living with Cancer Day 959

Today was almost repeat of yesterday, if it were not for sweating all night long from 9:00 PM last night to 8:00 AM today. I was sweating as if I was in a sauna from head to toe, the only good news I did sleep through it on only got up around midnight to go to the bathroom. Still, the rest of the day was another Good day, I spent most of the morning at the cancer center receiving my second infusion of the new treatment plan. Early tomorrow morning I will be at Shutter Delta Medical Center getting a blood transfusion because of my Hemoglobin is too low.

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