2019-12-01 Living with Cancer Day 998

Date: 2019 December 01, at 07:15:05 PST
Weather: 54 °F to 59 °F Cloudy and Rain
Location: UCSF Helen Diller Medical Center at Parnassus Heights, San Francisco, CA

A New Day
Today started at 6:00 with my vitals being taken and my blood being drawn. Results became available at 6:30, with the numbers holding.

I did some cleanup of my overnight devices, iPad, iPhone, and Laptop, ready for use during the day.

It’s 7:15, ready for my 1st walk, on return my breakfast should arrive soon. Got 4 walks around the ward today within 15 minutes. After my return, I cleaned up my bed station, started checking my mail, still a lot of ads for the last day of Thanksgiving and tomorrow’s Cyber Monday. Last but not, resting and waiting for my breakfast.

Breakfast Confusion
Breakfast did arrive around 8:00, but it was a bit short, all I got was a Strawberry Yogurt and a White Roll. It turns out there was some problem with the online system.

Until the real breakfast would arrive around 8:30 the day nurse took my vitals and gave me my regular morning medication.

By 8:20 Dr. Shah my UCSF Oncology doctor came down for her round. She is very happy that I am still walking, even increased my rounds, it will help with the recovery as my condition will drop when I had my last treatment tomorrow morning.

BTW, Dr. Shah will not be visiting me tomorrow, but Dr. Thomas Martin, associate director of UCSF’s myeloma program and director of the unrelated donor transplantation programs for adults at UCSF Medical Center, will see me instead.

Back on normal Schedule
Around 8:45 my schedule was back on normal starting with getting my daily medication a bit late, but that is no real issue. What is important is getting my Anti-fungus Antibiotics on time, which is 9:00 Am and 9:00 PM.

After having taken my medication I started to feel a bit dizzy around 9:15 and took some dizzy medication only to doze off watching TV.

I woke up around 10:15 to take my Treatment Medication, Day 3, Cycle 2. Tonight I will start my last Day.

My 2nd Walk
Dianne and I had our second walk before lunch, it is getting a bit harder to walk our 3 round as the Chemo Treatment is starting to take its toll on my body, however, I did it. Getting back to my room I took a 30 minutes nap before lunch arrived.

Lunch Time and More
Lunchtime was on time, I did order a bit too much, I side effect as my Chemo Treatment is starting to take effect. After lunch, I took along a 1-hour 15-minute Nap, opening my eyes every so often to watch a few moments of TV Dianne was watching.

Around my long nap the day nurse came by to replace my power port dressing, the needle was not replaced.

Afternoon Activities
Being awake after my long nap, I watch some movies on TV from 14:00 to 15:45. I had my shower right afterward before resting a bit until Dinner arrived around 16:45.

Like lunch, dinner was a bit too much as well. I will cut back my orders for tomorrow. After dinner, I rested again and watched some TV.

Evening Activities
I ended the day by watching TV and getting some rest. Around 21:00 (9:00 PM) shortly after nurses shift change, it is time for my night setup. Starting with the Pulse Oximeter being put on and checked out. By 21:30 I put on my CPAP Nasal Mask and let the machine start up automatically by just taking some deep breath.

Around 22:00 the nurse comes with the Chemo medication to start the treatment. Tonight it will be the last of 4 treatment cycles, Day 4, cycle 1. Tomorrow at 10:00 I will receive my last treatment, Day 4, cycle 2. It looks like my body will survive this one.

Treatment Cycle Two
After having finished treatment cycle one, I may get my clean Stem Cells injected either on Tuesday or Wednesday. It will be stage two of the treatment lasting anywhere from 10 to 15 days. This treatment cycle will be rougher than the first one and the question is can my body survive it?

2019-11-30 Living with Cancer Day 997

Date: 2019 November 29, at 06:30:57 PST
Weather: 43°F to 52F Mostly Cloudy
Location: UCSF Helen Diller MC at Parnassus Heights, San Francisco, CA

Getting started
It is about 6:30 and the night nurse got ready for me to start the day. After taking my vitals I am getting my morning medication. Around 7:00 my FentaNYL patches were changed as well.

Shortly afterward my breakfast arrived, which was very good. Dianne and I went after it for a walk around the ward.

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2019-11-23 Living with Cancer Day 990

Today was a good day! It started at 6:30 with me watching Bayern München vs Fortuna Düsseldorf, which Bayern won 4:0. The game was over 8:15, just in time for me to be dressed and ready to go with Dianne and Denise to San Francisco for the Great Dickens Christmas Fair. This is the 37th Season and 20th Year at the Historic Cow Palace. Inside it is the recreation of Old London, the Docks, Nickelby Road, Victoria & Albert Music Hall, and Fish Street with all it pubs and restaurants serving English as well as other food common during the Dickens Period. Some come for the food, others for the theater plays and/or vendors selling old English Merchandise.

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2019-11-20 Living with Cancer Day 987

Today was yet another good day! Since I had no appointments, I got up around 8:00 thinking it was Thursday, Garbage collection day, after I was done and downstairs looking at my schedule I noticed my mistake. As to my Dizziness and Stomach cramps it was at a very, very level. I had a small breakfast so that I could take my medication on not an empty stomach. The rest of the morning was walking and shopping with Dean.

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2019-11-19 Living with Cancer Day 986

Today was yet another so-so day! Since I got a 9:00 appointment, I got up around 7:30, only to deal with some Dizziness and Stomach cramps. I ate a small breakfast so that I could take my medication on not an empty stomach. Dianne came at 8:30 to take me for my 9:00 to Sutter Delta MR for a Blood transfusion. It took over an hour before the infusion was started, on the good news side they had other. Breakfast for me and took my lunch order.

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2019-11-14 Living with Cancer Day 981

Today was another good day, however, it was very busy starting after getting up @ 8:00. My morning chores included a lot of other stuff which changed my schedule a bit, such as starting my walk from 9:00 to 9:45. Since my upstairs chores included some physical work, I needed to rest for 15 minutes before going downstairs.

Once downstairs I had a quick breakfast and took all my medication. After a short rest, I started my walk with Dean at 9:45 getting back at 10:30.

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2019-11-13 Living with Cancer Day 980

Today was another good day, though the night was not. As during the first and second cycle, week 1, day 1, had as a side effect that I would be sweating after going to bed from about 11:00 PM to 5:00 AM from head to toe. I had it again, being preparing, I covered the bed with two large towels, which I change when I had to get up around midnight and later at 3:00 AM. Today’s treatment was part 2 of the Kyprolis/Cytoxan treatment week. Next week will be week 3, after which I will be off for a week. After that, we repeat the whole cycle again.

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2019-11-11 Living with Cancer Day 978

Today was another so-so day. As is normal for weekdays I wake around 5:00 AM when Dianne gets ready for work. I check my temperature and the overall status of my Dizziness, Stomach issues, and Sleep Apnea. This morning was no different, except with the results, I had a high temperature of 100F and was sweating. Because of it, I went back to sleep. By 8:00 the temperature was still high 99.5F, so I stayed in bed. I checked again at 9:00, the same result. At 10:00 still no change, but it was time to get up and go downstairs, which I did.

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2019-11-08 Living with Cancer Day 975

Today was a so-so day, at 9:00 the Sutter Home Care Nurse came by to do her physical checkup, which takes about 30 minutes. I passed with flying colors. The last thing she does is putting back a new needle into my port for having access. Dianne uses it for my daily hydration, and on treatment day it is used for the IV fluids, and it is also used for blood and platelet transfusions. Without a port, access is a simple needle poke in either the right or left arm with a good artery. With the number of blood draws alone a port is a must.

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2019-11-07 Living with Cancer Day 974

Today was another good day, like yesterday it started with Dean and me having our morning walk followed with Dean drive me to the Cancer Center for my third and last Zarxio Injection. Afterward, we went to Kaiser Permanente for Dean to have his Labs drawn. It took more than the 15 minutes, Dean had said it would. Normally on Thursday, there is a Farmers Market, it seemed it is closed for the season.

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