Let me start by saying I am back home. I got back from a 3-day stay at John Muir Hospital in Concord. I had a 102.4 F fever the night before my chemo treatment and my CBC numbers just before starting the infusion were too low, so they send me to the ER.
Date: 2019 August 12, at 06:37:31 PDT Weather: 61 °F Clear
Time to get up and ready for the day. Current status is, light stomach cramps, dizziness and ringing in the ears. After my morning routine I rested a bit before going downstairs.
Date: 2019 August 12, at 07:14:24 PDT Weather: 64 °F Sunny
I went downstairs and had a light breakfast with tea because of my stomach aches. After that I rested and got ready for our walk.
Date: 2019 August 12, at 08:01:05 PDT Weather: 72 °F Sunny
The walk with Dean started of ok, however after 2/3 of our walk my left shoulder started to be painful. The pain forced me to stop and rest for the last 1/3 of the way. In addition to the shoulder pain my stomach started to act up. The good news I made it home.
Date: 2019 August 12, at 08:38:05 PDT Weather: 73 °F Sunny
Back home from walking
Getting home Dean setup the Oxygen Compressor for me. It did help me with my breathing which was a bit shallow because of the pain. He watched me to make sure I was Ok before leaving. I had retired to my recliner and before I knew it was dozing off.
After about an hour later I was able to move around and get something to drink and eat. Not having much energy I just caught up with some TV shows I had recorded. Soon lunchtime did arrive.
Date: 2019 August 12, at 13:49:40 PDT Weather: 91 °F Sunny
Dean was so nice to get me a small salad from Wendys. In the meantime I was trying to get ESPN3 up on Apple TV. I was able to get it on my iPhone and Laptop but on ATV it tells me I have no account. I therefore watched Bayern vs Energie Cottbus on my laptop. However, not giving up with ATV I decided to logout and then back in, which suddenly allow me to have access to the game on ESPN3.
After the game was over I switched to regular TV watching some other shows I had recorded until I had to get ready for my doctor appointment.
Date: 2019 August 12, at 14:39:16 PDT Weather: 93 °F Sunny
Time for Follow-Up Appointment
Dianne picked me up for my follow-up appointment with my oncology doctor. In summary the new cancer treatment seems to be very effective. The issue of fatigue is due to the fungus treatment, especially the antibiotics and its dosage.
Moving forward, my current antibiotic will be changed to one that does not have the skin issues as a side effect, a new trough ad fungus draw are scheduled for 1st week in September.
Before leaving, I went for a CBC and Myeloma blood draw. Since the result of the CBC draw sowed that the platelet count was low, 46, the doctor suspended taking the cancer pill (Pomalyst) for now.
Date: 2019 August 12, at 17:15:28 PDT Weather: 95 °F Sunny
Getting back home from the doctor appointment I rested since I was totally exhausted. Dinner time was not far away, therefore I watched some more recorded TV shows.
Once dinner was served, I just could not get my appetite up to eat much. Some of it is link to my lack of energy, the other that I still have stomach cramps.
Date: 2019 August 12, at 18:34:57 PDT Weather: 93°F Sunny
Calling it a Day
As mention before, I am just unable to concentrate on anything. It took some doing to finished today’s blog. On the positive side, using the Day One application did help since I enter the events as they happen, leaving at the end of the day just the dinner and calling a day events to be entered.
Having finished dinner, we spend the rest of the evening watching TV before calling it a day.
Date: 2019 August 10, at 07:20:48 PDT Weather: 68 °F Mostly Cloudy Location: Antioch, CA, United States
Dieter, Carsten and Renée arrived late last night. I was already in bed, since after dinner, I had taken a shower which caused my system to be very low on energy.
Getting up I had some stomach aches and was a bit lightheaded. After finishing my morning routine, I went downstairs.
Today’s posting looks different as I started to use the application Day One to capture my activities. I have had this app for two years and forgot after my cancer announcement about it. Let me know what you think of it, maybe have suggestion what to remove or add.
Date: 2019 August 08, at 06:49:50 PDT Weather: 61 °F Sunny Location: Antioch, CA, United States
Today was another *so-so day, no real issues getting up and going downstairs for breakfast. I did start sweating a bit once I got downstairs. I had my normal Shoulder/Neck pain and by the time I started my morning walk, my lower back pain started. Interesting enough it did not bother me during the morning walk. For most of the day my pain location with higher levels were the lower back, hip, and shoulder/neck. Close to dinner time my stomach acted up a bit and I started to have a light headache as well. In addition, my energy level was at a low level, I did drink some energy drinks, which did bring up the energy a bit. Since I will have a full chemo day tomorrow, I will also get hydration, which will bring up my energy level.
Today was another good day, starting with a good night sleep. Being Saturday I slept in until 7:45. After my upstairs short morning routine, I went downstairs for some light breakfast Dianne had prepared. As to my health related issues, very little dizziness and no stomach issues. Even the sweating was very low. I felt good ready to go for my morning walk with Dean. Today’s walk was on a modified route that was a bit longer, 0.6 miles (ca. 1 km) in 30 minutes with an elevation of 13 feet (ca. 4 m). We did not want to set a record, but it turned out, walking the same speed, talking during the walk, no breathing issues and not stopping to rest, seems to be a sign of improvement. I did encounter afterwards a small problem, my calf muscles started to hurt after lunch, a sign that my muscles are starting to regenerate.
Today was the second day after Chemo Treatment day, which should have been based on based cycles should have been a very good day. However, like yesterday it turned out to be a so-so day, if not a bad day.
Getting up, I had the usual light dizziness, stomach ache, and sweating. Starting my upstairs with my morning routine the pain level of my shoulder and lower back pain increased to the point that I ad to rest for about 15 minutes before going downstairs.
Today was the first day after Chemo Treatment day, which normally is a very good day. This can not be said for today which turned out to be a so-so day.
Getting up, I had the usual light dizziness, stomach ache, and light sweating. Things changed during my upstairs morning routine which includes for Thursday some additional activities that triggered today for my pain levels and sweat to increase to the point that I had to rest upstairs for about 15 minutes before going downstairs.
Today was a bad day, it did start around 3:00 when I noticed some muscle pain on my right side around the hip and buttocks. I took my early Dizziness and stomach setting medication (Zofran) around 4:00, which is my first morning activity. At that point the hip pain was still there. Trying to change position increased the pain level for a moment.
Getting up I had the usual light dizziness, stomach ache and no sweating. My shoulder pain was at the normal level, and in preparation to not have my shoulder pain get out of control, I took two Tylenol, which keep it at an acceptable level.
Today was a great day, it did start off the right way, I took my early Dizziness and stomach setting medication (Zofran) when I woke up around 4:00, which is my early morning activity for as long as I can remember, and it works. In the worst case it lowers both settings when I getup around 7:00 to start my real Morning routine.
Getting up today I had the usual light dizziness, stomach ache, but no sweating. As to my shoulder pain it was at the normal level, I do however, in preparation to not have my shoulder plate’s pain get out of control, take two Tylenol, which keep it at an acceptable level.